PKU Culinary Event in Ohio

Register Here

Join Chef Andy Broder for a day of of hands-on cooking the low-protein way!

You will take away useful cooking and nutritional tips, as well as a variety of easy and delicious recipes for all members of your family to enjoy. At the end of the event, enjoy the food prepared that evening!

Hear Kendra Bjoraker, PhD, of 3:1 Neuropsychology Consultants, speak about “PKU, Phe Levels, and the Brain.”

Learn about “Daily Treatment with KUVAN® (sapropterin dihydrochloride) Tablets for Oral Use or Powder for Oral Solution.”

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Family Fund Day at Cosley Zoo

Come join us for fun on the farm at Cosley Zoo!

Details and Registration Here

Family-Fund_Day2015

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Pictures from the Biomarin Event at the Field Museum Uploaded

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Run for rare disease Fundraiser

De-PHEt PKU

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Andrew Craig Memorial Scholarship

Are you going to college this year and are looking for a scholarship? Don’t forget to apply for the Andrew Craig Memorial Scholarship. The form is in the “Resources” menu.

Andrew Craig Memorial Scholarship Form

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Disney World PKU-Friendly Food

If you look in the Resources > Traveling Tips Menu, you’ll see a new submenu to Disney’s website which includes a list of PKU-friendly dishes at their restaurants.

Disney World PKU Restaurants

Walt Disney Parks and Resorts is committed to offering a wide range of options for you and your family. In order to assist Guests with their dining choices, we are able
to provide lists of products that may be available. Please note that while we strive to provide as much information as possible, product offerings are subject to change at
any time without notice and may not be available at all locations or at the locations suggested on these guides. Guests should notate any special dietary requests at the
time of booking their dining reservation. Guests may also speak with a chef or manager upon arrival at the dining location.

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New Events Added!

Click here to see all events. (Or look to the right)

Biomarin Cooking Class

BioMarin Cooking Class in Wisconsin

Cosley Zoo Family Fun Day

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New Photos: Annual Meeting 2014

Annual Meeting 2014

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Humans and large primates have smiliar DNA through evolution

Scientists at the Ann & Robert H. Lurie Children’s Hospital of Chicago identify disease genes to treat illnesses like PKU.

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Loisí Bread

About 150 Phe per Recipe

Loisí Bread
Loisí Bread
Ingredients
Servings:
Instructions
  1. Mix dry ingredients with fork.
  2. Add water/oil mixture and mix wel with a spatula to get he edge of the bowl clean
  3. Let rise 30 minutes in a warm oven (preheat o 150 then turn off).
  4. Knead by hand for three minutes on a surface floured with wheat starch. You may need to add more wheat starch gradually as you knead.
  5. Place in oiled 10-inch loaf pan. Let rise again. When it gets a little above the rim of the pan, place in a hot oven preheated to 350 degrees
  6. After it is in the oven for 15 minutes, brush the top with melted butter. Let bake 10 more minutes.
  7. Place on a wire rack and let cool 15 minutes.
  8. Put in a brown paper grocery bag to retain moisture, until completely cooled.
  9. Slice into individual slices, wrap in Saran Wrap and place in freezer-proof container in the freezer. Stores well.
  10. About 150 PHE per recipe.
Optional
  1. Turn this into cinnamon raisin swirl bread by adding ½ c raisins to the batter (Sunmaid baking raisins are great!)
  2. Then before you put the dough in the bread pan for a final rise, roll or press it out into a rectangle and sprinkle 3 Tbsp sugar mixed with 2 tsp cinnamon over it.
  3. Roll it up and form it into a loaf shape before placing in the bread pan.
Recipe Notes

150 Phe per Recipe

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