Monthly Archives: May 2015

Thank you for coming to the Family Fund Day 2015

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Take Action! HR971

Take Action! OPEN ACT & United Rare Disease Day Please call Congress TODAY and ask them to include the OPEN ACT, HR 971 (Orphan Product Extensions Now, Accelerating Cures & Treatments) in the 21st Century Cures Legislation. The OPEN ACT … Continue reading

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Where do your donations go?

It may also be helpful to know that since 2010, we have invested $1.3 million in research. Some of our initial successes with these funds raised primarily by local organizations have resulted in: • Accelerating a clinical trial by 3-4 … Continue reading

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Event: Parent Cafe on June 6th

Register Here Our second event of the year is right around the corner! A no charge event in great location to get together with parents and children. Your kids can play together in a three story playhouse while you talk … Continue reading

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